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jasonbobes library [251 articles]

Nye artikler sendt til jasonbobes bibliotek.
  • Genetic exceptionalism. Too much of a good thing?
    posted to privacy by jasonbobe on 2008-07-16 07:23:16 as **
  • European Practices of Genetic Information and Insurance. Lessons for the Genetic Information Nondiscrimination Act
    JAMA, Vol. 300, No. 3. (2008), pp. 326-327.
    by Ine Van Hoyweghen, Klasien Horstman
    posted to policy gina discrimination by jasonbobe on 2008-07-15 22:14:22 as read
  • The ethics of characterizing difference: guiding principles on using racial categories in human genetics
    Genome Biology, Vol. 9 (15 July 2008), 404.
    by Sandra S Lee, Joanna Mountain, Barbara Koenig, Russ Altman, Melissa Brown, Albert Camarillo, Luca Cavalli-Sforza, Mildred Cho, Jennifer Eberhardt, Marcus Feldman, Richard Ford, Henry Greely, Roy King, Hazel Markus, Debra Satz, Matthew Snipp, Claude Steele, Peter Underhill
    posted to race ethnicity by jasonbobe on 2008-07-15 17:40:38 as read along with 1 person aristos81
  • PUBLIC HEALTH: A Case Study of Personalized Medicine
    Science, Vol. 320, No. 5872. (4 April 2008), pp. 53-54.
    by SH Katsanis, G Javitt, K Hudson
    posted to personalizedmedicine personal-genomics by jasonbobe on 2008-06-07 00:39:48 as ****
  • Home DNA test kits cause controversy
    Lancet, Vol. 371 (24 May 2008), pp. 1739-1740.
    by Priya Shetty
    posted to dtc by jasonbobe on 2008-06-04 23:33:03 as read
  • U.S. System of Oversight of Genetic Testing: A Response to the Charge of the Secretary of Health and Human Services
    (March 2008)
    posted to regulation genetic-testing elsi dtc by jasonbobe on 2008-06-04 23:12:52 as read
  • Communicating the results of clinical research to participants: attitudes, practices, and future directions.
    PLoS medicine, Vol. 5, No. 5. (13 May 2008)
    by DI Shalowitz, FG Miller
    posted to virtuous-circle elsi disclosure by jasonbobe on 2008-06-04 23:07:24 as ***** along with 1 person HelenaK
  • Bacteria Subsisting on Antibiotics
    Science, Vol. 320, No. 5872. (4 April 2008), pp. 100-103.
    by Gautam Dantas, Morten O Sommer, Rantimi D Oluwasegun, George M Church
    posted to microbiomics by jasonbobe on 2008-05-16 16:27:19 as read along with 7 people operon tmmurali madhadron gvdh kjglennie melting osilander
  • Personally Controlled Online Health Data -- The Next Big Thing in Medical Care?
    N Engl J Med, Vol. 358, No. 16. (17 April 2008), pp. 1653-1656.
    by Robert Steinbrook
    posted to pchr by jasonbobe on 2008-05-16 15:48:53 as ***** along with 1 person Gaetan
  • Science 2.0 -- Is Open Access Science the Future?
    Scientific American (April 2008)
    by Mitchell M Waldrop
    posted to science20 open-access by jasonbobe on 2008-05-16 15:47:52 as *** along with 1 person Gaetan
  • Scenarios for the future of synthetic biology
    Industrial biotechnology, Vol. 4, No. 1. (2008), pp. 39-49.
    by Stephen Aldrich, James Newcomb, Robert Carlson
    posted to synthetic-biology scenario-planning by jasonbobe on 2008-05-16 15:45:52 as read
  • Lost in transition: challenges in the expanding field of adult genetics.
    Am J Med Genet C Semin Med Genet, Vol. 142, No. 4. (15 November 2006), pp. 294-303.
    by MR Taylor, JG Edwards, L Ku
    posted to adult-genetics by jasonbobe on 2008-05-13 02:50:12 as **** along with 1 person andyjeanne
  • Effect of a computer-based decision aid on knowledge, perceptions, and intentions about genetic testing for breast cancer susceptibility: a randomized controlled trial.
    JAMA : the journal of the American Medical Association, Vol. 292, No. 4. (28 July 2004), pp. 442-452.
    by MJ Green, SK Peterson, MW Baker, GR Harper, LC Friedman, WS Rubinstein, DT Mauger
    posted to web-based rct genetic-testing decisionmaking counseling cancer by jasonbobe on 2008-05-13 02:42:51 as read
  • Highly penetrant hereditary cancer syndromes.
    Oncogene, Vol. 23, No. 38. (23 August 2004), pp. 6445-6470.
    by R Nagy, K Sweet, C Eng
    posted to cancer by jasonbobe on 2008-05-12 16:40:47 as read
  • Consensus on the use and interpretation of cystic fibrosis mutation analysis in clinical practice.
    Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society (3 May 2008)
    by C Castellani, H Cuppens, M Macek, J J J Cassiman, E Kerem, P Durie, E Tullis, B M M Assael, C Bombieri, A Brown, T Casals, M Claustres, G R R Cutting, E Dequeker, J Dodge, I Doull, P Farrell, C Ferec, E Girodon, M Johannesson, B Kerem, M Knowles, A Munck, P F F Pignatti, D Radojkovic, P Rizzotti, M Schwarz, M Stuhrmann, M Tzetis, J Zielenski, J S S Elborn
    posted to cf by jasonbobe on 2008-05-12 15:03:25 as ***
  • Providers' knowledge of genetics: A survey of 5915 individuals and families with genetic conditions.
    Genetics in medicine : official journal of the American College of Medical Genetics, Vol. 9, No. 5. (May 2007), pp. 259-267.
    by EK Harvey, CE Fogel, M Peyrot, KD Christensen, SF Terry, JD McInerney
    posted to survey physicians opinion education by jasonbobe on 2008-05-11 14:34:16 as ****
  • The current status of medical genetics instruction in US and Canadian medical schools.
    Academic medicine : journal of the Association of American Medical Colleges, Vol. 82, No. 5. (May 2007), pp. 441-445.
    by VC Thurston, PS Wales, MA Bell, L Torbeck, JJ Brokaw
    posted to training physicians education by jasonbobe on 2008-05-11 14:29:25 as read
  • notes Penetrance of 845G--> A (C282Y) HFE hereditary haemochromatosis mutation in the USA.
    Lancet, Vol. 359, No. 9302. (19 January 2002), pp. 211-218.
    by E Beutler, VJ Felitti, JA Koziol, NJ Ho, T Gelbart
    posted to incidentalome hfe false-positives by jasonbobe on 2008-05-08 15:06:03 as read
  • Biomedical science: betting the bank.
    Nature, Vol. 452, No. 7190. (24 April 2008), pp. 926-929.
    by B Trivedi
    posted to cohort biobanks by jasonbobe on 2008-05-07 21:29:11 as read
  • Tectonic shifts in the health information economy.
    The New England journal of medicine, Vol. 358, No. 16. (17 April 2008), pp. 1732-1737.
    by KD Mandl, IS Kohane
    posted to pchr informatics by jasonbobe on 2008-05-07 21:26:14 as read along with 3 people namwenkram Gaetan elenacampo
  • A draft proposal for the required Minimum Information about a high-throughput Nucleotide SeQuencing Experiment - MINSEQE
    (April 2008)
    posted to standards sop sequencing by jasonbobe on 2008-05-07 21:23:30 as read
  • Genetics Bill Cruises Through Senate
    Nature, Vol. 451 (May 2008)
    by M Wadman
    posted to nondiscrimination gina elsi by jasonbobe on 2008-05-07 21:21:19 as read
  • Out of Sequence: How Consumer Genomics Could Displace Clinical Genetics
    Nature Reviews Genetics (2008)
    by MW Foster, RR Sharp
    posted to elsi dtc by jasonbobe on 2008-05-07 21:13:55 as **
  • Race in a Genetic World
    Harvard Magazine (May 2008), pp. 62-65.
    posted to race genetics by jasonbobe on 2008-05-07 21:11:51 as read
  • The incidentalome: a threat to genomic medicine.
    JAMA : the journal of the American Medical Association, Vol. 296, No. 2. (12 July 2006), pp. 212-215.
    by IS Kohane, DR Masys, RB Altman
    posted to incidentalome genomics elsi by jasonbobe on 2008-05-02 23:11:33 as read
  • Validation of a food frequency questionnaire measurement of selected nutrients using biological markers in African-American men
    European Journal of Clinical Nutrition, Vol. aop, No. current.
    by MD Holmes, IJ Powell, H Campos, MJ Stampfer, EL Giovannucci, WC Willett,
    posted to nutrition by jasonbobe on 2008-04-14 03:30:37 as **
  • Merging and emerging cohorts: Not worth the wait
    Nature, Vol. 445, No. 7125., pp. 257-258.
    by Walter C Willett, William J Blot, Graham A Colditz, Aaron R Folsom, Brian E Henderson, Meir J Stampfer
    posted to cohort study-design by jasonbobe on 2008-04-13 14:36:36 as read
  • Duty to disclose what? Querying the putative obligation to return research results to participants
    J Med Ethics, Vol. 34, No. 3. (1 March 2008), pp. 210-213.
    by FA Miller, R Christensen, M Giacomini, JS Robert
    posted to disclosure study-design by jasonbobe on 2008-04-02 21:04:36 as ***** along with 1 person PredictER
  • Is it ethical to keep interim findings of randomised controlled trials confidential?
    Journal of medical ethics, Vol. 34, No. 3. (March 2008), pp. 198-201.
    by FG Miller, D Wendler
    posted to disclosure elsi study-design by jasonbobe on 2008-04-02 20:54:06 as **** along with 1 person PredictER
  • Currents in Contemporary Ethics
    The Journal of Law, Medicine & Ethics, Vol. 36, No. 1. (2008), pp. 174-178.
    by Rothstein, A Mark
    posted to discrimination elsi gina legislation nondiscrimination policy by jasonbobe on 2008-04-02 20:52:15 as **** along with 1 person PredictER
  • Some legal aspects of genetic screening.
    Med Law, Vol. 22, No. 3. (2003), pp. 401-409.
    by HR Abbing
    posted to esli screening by jasonbobe on 2008-04-02 20:48:51 as ** along with 1 person PredictER
  • Genetic predictive testing and private insurances.
    Health Policy, Vol. 18, No. 3. (August 1991), pp. 197-206.
    by HD Abbing
    posted to elsi insurance by jasonbobe on 2008-04-02 20:47:22 as ** along with 1 person PredictER
  • Multiplex genetic testing. The Council on Ethical and Judicial Affairs, American Medical Association.
    Hastings Cent Rep, Vol. 28, No. 4. (g 1998), pp. 15-21.
    posted to elsi mutliplex by jasonbobe on 2008-04-02 20:34:33 as **** along with 1 person PredictER
  • ASHG report. Statement on informed consent for genetic research. The American Society of Human Genetics.
    Am J Hum Genet, Vol. 59, No. 2. (August 1996), pp. 471-474.
    posted to consent elsi by jasonbobe on 2008-04-02 20:33:19 as **** along with 1 person PredictER
  • Genetic testing and insurance. The Ad Hoc Committee on Genetic Testing/Insurance Issues.
    Am J Hum Genet, Vol. 56, No. 1. (January 1995), pp. 327-331.
    posted to elsi insurance by jasonbobe on 2008-04-02 20:32:44 as ** along with 1 person PredictER
  • Genetic testing and breach of patient confidentiality: Law, ethics, and pragmatics.
    Am J Obstet Gynecol (8 March 2008)
    by Howard Minkoff, Jeffrey Ecker
    posted to confidentiality duty_to_warn elsi by jasonbobe on 2008-04-02 20:31:49 as **** along with 1 person PredictER
  • Patenting and licensing in genetic testing
    Eur J Hum Genet, Vol. 16, No. 4. (0000), pp. 405-411.
    by S Ayme, G Matthijs, S Soini
    posted to ip by jasonbobe on 2008-04-02 20:30:28 as ** along with 1 person PredictER
  • From genetic privacy to open consent.
    Nature reviews. Genetics (1 April 2008)
    by Jeantine E E Lunshof, Ruth Chadwick, Daniel B B Vorhaus, George M M Church
    posted to consent elsi open-consent privacy by jasonbobe on 2008-04-02 19:48:45 as read along with 3 people jyuh hpiwowar PredictER
  • An internet-based randomized, placebo-controlled trial of kava and valerian for anxiety and insomnia.
    Medicine, Vol. 84, No. 4. (July 2005), pp. 197-207.
    by BP Jacobs, S Bent, JA Tice, T Blackwell, SR Cummings
    posted to internet-based-trials medicine selfreport study-design by jasonbobe on 2008-04-02 06:06:34 as read
  • Ethics of phase 1 oncology studies: reexamining the arguments and data.
    JAMA : the journal of the American Medical Association, Vol. 290, No. 8. (27 August 2003), pp. 1075-1082.
    by M Agrawal, EJ Emanuel
    posted to consent elsi participatory-research by jasonbobe on 2008-04-02 06:04:07 as read
  • Update and Analysis of the University College London Low Density Lipoprotein Receptor Familial Hypercholesterolemia Database
    Annals of Human Genetics, Vol. 0, No. 0. (0), pp. ???-???.
    by SEA Leigh, AH Foster, RA Whittall, CS Hubbart, SE Humphries
    posted to associations databases genetic-testing informatics ldlr by jasonbobe on 2008-04-01 19:50:50 as ****
  • A 67-year-old man who e-mails his physician.
    JAMA, Vol. 292, No. 18. (10 November 2004), pp. 2255-2261.
    by WV Slack
    posted to hit by jasonbobe on 2008-04-01 16:32:02 as read
  • Cybermedicine for the patient.
    Am J Prev Med, Vol. 32, No. 5 Suppl. (May 2007)
    by WV Slack
    posted to hit by jasonbobe on 2008-04-01 16:30:05 as read
  • A computer-based medical-history system.
    N Engl J Med, Vol. 274, No. 4. (27 January 1966), pp. 194-198.
    by WV Slack, GP Hicks, CE Reed, LJ Van Cura
    posted to selfreport by jasonbobe on 2008-04-01 15:12:07 as **
  • Patient-computer dialogue.
    N Engl J Med, Vol. 286, No. 24. (15 June 1972), pp. 1304-1309.
    by WV Slack, CW Slack
    posted to selfreport by jasonbobe on 2008-04-01 15:11:25 as **
  • The value of parental report for diagnosis and management of dehydration in the emergency department.
    Ann Emerg Med, Vol. 41, No. 2. (February 2003), pp. 196-205.
    by SC Porter, GR Fleisher, IS Kohane, KD Mandl
    posted to selfreport by jasonbobe on 2008-04-01 15:00:13 as ** along with 1 person and 1 group familydoc fammed-publichealth
  • Ethical, legal, and social implications of biobanks for genetics research.
    Adv Genet, Vol. 60 (2008), pp. 505-544.
    by SB Haga, LM Beskow
    posted to biobanks elsi by jasonbobe on 2008-03-26 15:18:26 as read along with 3 people CurAbility PredictER PAULIUS07
  • Research Ethics Recommendations for Whole-Genome Research: Consensus Statement
    PLoS Biology, Vol. 6, No. 3. (1 March 2008), e73.
    by Timothy Caulfield, Amy L Mcguire, Mildred Cho, Janet A Buchanan, Michael M Burgess, Ursula Danilczyk, Christina M Diaz, Kelly Fryer-Edwards, Shane K Green, Marc A Hodosh, Eric T Juengst, Jane Kaye, Laurence Kedes, Bartha M Knoppers, Trudo Lemmens, Eric M Meslin, Juli Murphy, Robert L Nussbaum, Margaret Otlowski, Daryl Pullman, Peter N Ray, Jeremy Sugarman, Michael Timmons
    posted to consent disclosure elsi genomics by jasonbobe on 2008-03-26 13:20:55 as read along with 2 people cntbioet PredictER
  • DNA DATA: Proposal to 'Wikify' GenBank Meets Stiff Resistance
    Science, Vol. 319, No. 5870. (21 March 2008), pp. 1598-1599.
    by Elizabeth Pennisi
    posted to science20 by jasonbobe on 2008-03-23 23:35:23 as ** along with 2 people dullhunk hpiwowar
  • Recreational genomics? Dreams and fears on genetic susceptibility screening
    Eur J Hum Genet, Vol. 16, No. 4. (0000), pp. 403-404.
    by Gertjan B van Ommen, Martina C Cornel
    posted to dtc genetics genomics personalgenomics by jasonbobe on 2008-03-21 16:13:38 as read along with 1 person PredictER
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